EURORDIS - The Voice of Rare Disease Patients in Europe

EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 798 rare diseases patient organisations in 69 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe

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This web page eurordis.org presently has a traffic classification of zero (the lower the superior). We have explored thirty pages inside the web site eurordis.org and found three thousand one hundred and ninety-eight websites referring to eurordis.org. We were able to observe three contacts and directions for eurordis.org to help you contact them. We were able to observe five mass media accounts owned by this website. This web page eurordis.org has been online for one thousand two hundred and thirty-two weeks, ten days, thirteen hours, and thirty-nine minutes.
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EURORDIS.ORG HISTORY

This web page eurordis.org was first documented on November 23, 2000. It is currently one thousand two hundred and thirty-two weeks, ten days, thirteen hours, and thirty-nine minutes young.
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2000

BUSINESS PERIOD OF EXISTANCE

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CONTACTS

EURORDIS

EURORDIS

Plateforme Maladies Rares

Paris, 75014

FR

EURORDIS

Yann Le Cam

Plate-forme Maladies Rares, 96 Rue Didot

Paris, 75014

FR

Eurordis - European Organization for Rare Diseases

Patrice Regnier

Plateforme Maladies Rares

Paris, 75014

FR

EURORDIS.ORG HOST

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PAGE TITLE

EURORDIS - The Voice of Rare Disease Patients in Europe

DESCRIPTION

EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 798 rare diseases patient organisations in 69 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe

CONTENT

This web page states the following, "What is a rare disease? Find information or help." We saw that the web site stated " What is an orphan drug? Improve the safety of your medicines." It also said " EURORDIS Round Table of Companies ERTC. List of the latest marketing authorisations and orphan medicinal products designations. Living with a Rare Disease. EURORDIS Community Advisory Board CAB Programme. Rare diseases in the arts."

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